Page 121 - Experience Based Co-design - a toolkit for Australia
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      3. Have patients tell you about their experience and then reflect on the improvement
Ask patients to tell you the story of their experiences with the improvement. Use open-ended, non-specific questions inviting the patient to re-experience it fully.
Recording patient stories on video is a very useful way of capturing critical aspects of the experience. Tools for this are available in the capture section of this toolkit.
4. Encourage patients to reflect on the improvement
Work carefully with patients through the questions to help them evaluate the improvement. The questions need to be paced carefully so patients have time to reflect on and answer them fully. Some paraphrasing and much encouragement should be used.
5. Document your findings about the experiences carefully
Use the biggest difference template to help you do this.
6. Identify changes to improve experience
Review your findings. Identify ways to reduce negative effects and accentuate positive effects of the improvement.
Use this tool to explore with the patient and avoid making them do all the work. The questions focus a great deal of attention on the patient and make great demands of their time, energy and emotional resilience. So, encourage patients (whatever their replies), and contribute your own and others’ ideas in support of those of patients you are working with.
Focus on learning about the effects and impacts of the prototype or actual service improvement. If you are worried about biasing the evaluation, ask a researcher or colleague to lead the session for you. However, avoid stepping away from the process; it is better to witness patients directly, and in so doing make yourself accountable, than to miss out on critical findings.
Having patients recall their experiences can be traumatic so make sure appropriate family and professional support is available.
      Adapted with permission from

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