Page 131 - Experience Based Co-design - a toolkit for Australia

After a few sessions, we conducted semi-structured, in-depth interviews with Tony, his mother and sister to tell us about their experience of using the board, and how they felt this improved communication with staff. These were audio recorded and transcribed verbatim. Quotes from these interviews were incorporated into subsequent educational sessions and focus groups.
As we could only have 2-3 nurses in the focus groups, we found this approach enabled honest, thoughtful and sometimes an emotional reflection from nursing staff about how they communicate with their adolescent patients and families.
In presentations to senior nursing staff and committees, we display Tony’s board, allowing our audience to read his family’s comments in silence, which has initiated some heartfelt conversations within these groups.