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 Experience Based Co-Design – A toolkit for Australia
Recruiting patients
the questions
Case Study 1 on NSW Brain Injury Rehabilitation Model of Care experienced delays in recruitment of and access to consumers and their families. This resulted in an initial analysis of a more limited set of consumer experiences than planned. They also noted difficulty connecting with consumers. They found that those who had a more positive experience were more likely to respond. This created a bias towards positive experiences and is one of challenges in meeting the equity principle of EBCD.
In your recruiting efforts for patients and their carers the following tips will be useful:
Use staff you’ve recruited to help you recruit patients
Try and include a diverse range of patients (age, sex, ethnicity) but also different services and treatments
If you need to recruit particularly vulnerable groups you may need to allow additional time and leverage of existing groups to build trust and rapport
Try and recruit early and use multiple modes to try and recruit e.g. direct invitations, posters, leaflets, local patient groups
Be clear that the approach is not about focusing on negative experiences – it’s about working together to find solutions
The NSW Department of Community Services has developed a practice resource to provide a consistent approach to working with Aboriginal people and communities. It contains information and practice tips all of which are relevant to EBCD projects.
Working with Aboriginal People and Communities. A Practice Resource.
     Working with Aboriginal People and Communities

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