Page 57 - Experience Based Co-design - a toolkit for Australia

‘touchpoints’ of your experience where either you had high or low points in your experience.
You will be able to review this and check that you are happy for us to use the video. The video will be shown at future staff, patient and combined events related to this project to allow participants to understand your experience using your words and emotions.
We will record the interview with a voice recorder. After the interview, we will convert this into a transcript. We will focus on the ‘touchpoints’ of your experience where either you had high or low points in your experience. The content of the interview may also be analysed so we can depict your story as a patient experience journey map.
You will be able to review this and check that you are happy for us to use those elements. You may be quoted as per the records in the transcript. These may be shown or played at future staff, patient and combined events related to this project to allow participants to understand your experience using your words and emotions.
If the details of your interview are to be used for any other purpose than described above we will come back to your for your consent.
What if I change my mind?
You can withdraw from the project at any time. Please be aware that if you withdraw after you approve the final record of your interview, your story may already have been used for the project.
What if my story includes a difficult experience?
It can be upsetting to share a story about a difficult health experience. Before you decide to take part you may like to:
• Talk about it with your health consumer organisation.
• Talk about it with someone you trust.
• Let us now so we can explore providing additional support.
The method used in this project is used internationally and particularly in the United Kingdom where it was developed.
Adapted from Consumers Health Forum of Australia, Real People Real Data