Health data a national asset; how will Telstra deliver on cancer registries?

Thursday, May 26, 2016

The Australian Healthcare and Hospitals Association (AHHA) has called on the Commonwealth Government to provide more details about the reported plan to allow Telstra Health to manage a new national cancer screening register from next year.

“We welcomed the announcement in the 2016–17 Budget that the government would invest in cancer screening registries, including proposed connections with the My Health Record. Integrating the smaller registries into a single entity has the potential to greatly reduce inefficiencies and support one of the key objectives of Primary Health Networks, to increase cancer screening in their communities,” AHHA Chief Executive Alison Verhoeven said.

“However, governance issues surrounding the plan to allow Telstra Health to manage the data obtained through the screenings, as reported in the Sydney Morning Herald today, require further clarification.

“We call on the government to provide details about who the data owner and custodian will be, who will control access to the data and how much it will cost. There must also be clarification on what public reporting on the data will be done and on who will compile those reports.

“A national registry has the potential to greatly improve service delivery for Australians with cancer. However, the AHHA believes these questions must be answered before management of the registry is decided.”

Media enquiries:
Alison Verhoeven
Chief Executive, The Australian Healthcare and Hospitals Association
0403 282 501