Deeble Issues Brief No. 53: Patient experience of Long COVID

Long Coronavirus Disease (COVID) is a growing public health challenge in Australia. People with Long COVID have a reduced ability to perform their normal daily activities due to debilitating symptoms that affect multiple body systems. However, the burden of Long COVID on people living with the condition and Australia’s healthcare system is poorly described, meaning care and support resources cannot be allocated appropriately.

Australia’s public health guidance for Long COVID is inconsistent. There is no single, nationally accepted case definition for Long COVID in Australia and public health messaging differs across each state and territory. This complicates an already challenging diagnostic process.

To ensure that Australians with Long COVID are recognised and supported with adequate and appropriate person-centred healthcare, social, and disability services, a number of key priority areas must be addressed.