The Cancer Institute NSW Patient-Reported Measures program enables personalised cancer care and elevates patients’ voices through a unique statewide system of multilanguage surveys.
The sharing of patient experiences, perspectives, outcomes, and concerns has influenced more than 26,000 patient consultations across 33 cancer services in 14 local health districts.
Using a tablet or mobile device, patients respond to a short survey about their care experience and well-being before their consultation. Responses are sent directly to their clinical records, allowing their clinical team to review them in real-time and address their patient’s needs at the appointment. Based on their concerns, self-care information and resources can also be emailed or provided directly to the patient.
The program supports equitable access to person-centred, outcome-focused, value-based care by breaking down barriers.
We know that each person’s cancer experience will be unique. The PRMs program supports tailored care by enabling patients to access information about their cancer treatment and side effects based on their survey responses.
Automated alerts for high-risk responses enhance care delivery by triggering timely interventions, ensuring immediate action on patient needs.
There are 10 in-language surveys to support people from culturally and linguistically diverse backgrounds.
Patients can complete surveys in their preferred language; all communications will be sent in their selected language.
Two tailored, evidence-based tools are available for Aboriginal and Torres Strait Islander cancer patients.
With people impacted by cancer at its core, the cancer PRMs amplifies patients’ voices, improves care outcomes, and embeds PRMs into clinical workflows for scalability and sustainability.
